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whiteshadowcgb

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Everything posted by whiteshadowcgb

  1. It's coming... God is good. The results aren't in. We just need to wait. A quote that helps me everyday "if we spend time worrying about tomorrow, we're wasting today" Things happen for a reason and worrying about your past and the future is wasting today. I've had really bad days for the past month. Highs and lows all days - nobody wants to deal with this but there are people out there just like us. We're really not that "different" some people have HSV some HPV some HIV and some all three! No one asks for it. I am just hoping that one day when I'm old drinking coffee with friends we can all sit and laugh about how ridiculous the fear of herpes was. If we can get to stay dormant and not transmit it will phase out. Unless the dipshits that passed it to us don't medicate themselves and keep spreading it. I'm not afraid of HSV. I'm afraid of passing it. Chin up :) brighter days are ahead of us!
  2. Its superior to Valtrex from my understanding. They are measuring OB's and shedding while on Pritelivir. So far, the posts that I have read, participantss report no "symptoms" they don't know about silent shedding (the clinic conducting the trial has that information) after the trial. All that information will be released and I believe that based on the outcome will determine moving foward to phase III. That should include 1000's of participants. Dr. Bill Halford is the only one I read about looking to create a vaccine (like chicken pox vaccine) but modern day medicine has moved away from using live virus to vaccinate people (why? I'm not sure, too risky? Not sure. The chicken pox vaccine was created with live virus) his research seems promosing but no one is standing behind him and his research (more grants needed) its worked in the past. He's estimating 10+ years.
  3. These are the top 3 contenders- it may turn into a waiting game and funding before any drug hits the market. Unless, government steps in fast tracks vaccine like they did when H1N1( swine flu) made its debut. That vaccine fast tracked in less than a year I believe. Don't quote me on anything tho! I'm new to all of this and am just researching.
  4. http://herpes.supportgroups.com/sg/herpes/i-am-in-the-genocea-study-for-a-vaccine-and-i-wanted?page=3 Here's a link about Genocea participant.
  5. http://m.seekingalpha.com/article/1154601-vical-s-herpes-vaccine-new-lab-results-confirm-move-to-the-clinic?source=email_rt_article_focus_1. Here's a link about Vical.
  6. This is a petition to fast track it and get it on the market. The FDA needs to approve the drug before it sells. In addition, funding is needed to produce/sell product (pharmaceutical companies) Vical is a company also working on. A vaccine that will start clinical trials. A lot of the hold up is due to $$$
  7. I have heard great things over the internet by a participant. She is in week 2 of phase II and has nothing but good things to report. Her post can be found on Terri Warren's page @med help and also supportgroups.com. In addition, a particpant by the username paralee (I think) also has had great things to say. I looked at clinicaltrials.gov and there is still open enrollment in Oregon,Indiana,Texas and Washington. I signed and would encourage everyone to. There is also a promising new drug from Vical that should start clinical trials later this year. The only down side is getting a pharmaceutical company to join/sell. With 3 new vaccines in trials they may wait to see which preforms best.
  8. Hang in there. You're a good person and doing the right thing. One thing I've learned from this site is...you're not being rejected, they're rejecting herpes. In addition, many people LIVE with this. All we have to do is live. I truly believe everything happens for a reason. Hugs!
  9. Your body won't seroconvert until 3-6months after exposure. Typically people have symptoms between 2-20 days. The best thing to do, is hang tight,get tested at the appropriate time (3-6 months after exposure) and out of respect for other individuals do not have sex until your results are confirmed.
  10. Learning- that is great advice. I think many people unknowingly receive this (count me in) I am still new and coping with all of the emotions and vow NEVER to have a relationship without disclosure. I don't wish the feelings I am having unto my worst enemy. "We" have the power to stop spreading this and "we" need to set aside selfish sexual acts with unknowing individuals. You never know what life is going to give you but I know I'm a better person than my 'giver' I'm honest. "When you can't change the direction of the wind, adjust your sails"
  11. I needed this today!! Thank you! I'm happy to hear you're doing well. This Irish blessing also helped me today. May God give you... For every storm, a rainbow. For every tear, a smile. For every care, a promise and a blessing in each trial. For every problem life sends, a faithful friend to share. For every sigh, a sweet song. And an answer for each prayer. God bless :)
  12. I doing some reading ( it's about all I do all day, everyday) that licorice gel/cream can help with that. I am still researching where it can be purchased. I guess I am a rare case but I never had episode that includes any rash/sores. But I was ready that this helps the virus stay under the skin and not surface. In addition, If you apply it when you first feel irritation it sooths the burn (which is my only symptom) Anyone else hear of this or read about it?
  13. Please sign these free and anonymous petitions to increase herpes research funding: http://www.petition2congress.com/3986/fund-peregrine-pharmaceutical-to-test-bavi-herpes/ http://www.petition2congress.com/3875/decrease-us-unemployment-find-cure-herpes/ http://www.petition2congress.com/3738/increase-herpes-research-funding/ http://www.change.org/petitions/please-increase-herpes-research-funding#?opt_new=t
  14. A quote by Dr. Suess ( my absolute favorite quote) "Don't cry because its over, smile because it happened." Not only am a "h" statistic, I am a statistic of suicide. When my son's father took his life this quote helped me on my darkest days. While losing a loved one is extremely painful this quote reminded me to look back and smile because "we" happened and I have the greatest gift of all, his son. The quote doesn't really apply to "h" but it helped me over that hurdle and I know i'll find one to help me over this hurdle.
  15. In addition...I would like add a quote I think is great. Life should not be a journey to the grave with the intentions of arriving safely in a pretty and well preserved body, but rather to skid in broadside in a cloud of smoke thoroughly used up, totally worn out, and loudly proclaiming "Wow! What a ride!" ~ Hunter S. Thomp
  16. I was just wondering how many members is this forum? I am new to all of this and am still "shell shocked" but all the positive energy here is helping. I am slowly feeling better about myself and truly know that time is a healer. Like many, I didn't ask for this condition. Wasting time on negative energy and being upset doesn't change anything so I am trying my hardest not to go down that road. I am still "me" but with a secret :) I owe that level of thinking to the "7 habits of highly effective people" There is only so much in life you can control and you shouldn't let the things you can't control consume/anger you. I am pleased that I have found this website and it has helped in so many ways. So thanks! I was just curious if there was a count of how many people are signed up here?
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