mr_hopp
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Posts posted by mr_hopp
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Hey there @Chelsjonap,
Understanding herpes and transmission can feel a bit daunting and confusing, especially when you're dealing with throat herpes. It's pretty rare to find HSV-1 settling down in the throat—this virus usually likes to hang around the mouth (aka "cold sores"). There's not a ton of clear-cut science on how often or easily throat herpes can be passed along, unfortunately, so we're a bit in the dark around the data. For most people who get throat herpes that I've heard of, it's also quite rare for there to be many recurrences, especially after the body's immune system has built up antibodies to keep it under control.
So should you take meds? Even though we don't know the specific shedding rate of throat herpes, taking daily antivirals can cut down whatever that risk is by about 50% because it reduces the amount of asymptomatic viral shedding. As for the safety of kissing or oral fun when you're not having an outbreak, well, it's a bit of a grey area given the rarity of your situation. But generally, avoiding close contact during outbreaks is key, and when you're feeling fine, those antivirals and your immune system are working hard together to keep things under wraps.
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Hey @CFlip, it's totally normal to feel cautious and take your time before jumping back into things, especially after dealing with something as sensitive as an anal herpes outbreak. It's smart to consult with a gastroenterologist, especially given your history with hemorrhoids; they can give you the all-clear or address any other issues that might be hanging around.
As for knowing when you're ready to bottom again, listen to your body. If you're still feeling sensitive or raw, it might be a sign to wait a bit longer. Everyone's recovery timeline is different, so don't rush it. And when you do decide you're ready, using barrier protection (brings down transmission by 65%) and daily suppressive therapy (brings down transmission by 50%) is a wise choice to help protect yourself and your partners. It's all about comfort and confidence, so trust your gut (and your butt!) on when the time is right.
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Hey @Surferdude3536,
I hear you, it's totally frustrating when you're doing everything you can, seeing specialists, and still not finding relief or clear answers. It's not common for genital HSV1 to cause constant irritation without typical outbreaks, but everyone's body responds differently to the virus. It's possible, but given your situation, it might be something else contributing to your symptoms.
Since the dermatologist hasn't found clear signs of a skin condition that could be biopsied, and antibiotics haven't helped, it might be time to consider other specialists. Have you thought about seeing an allergist? Sometimes skin irritation can be related to allergic reactions or sensitivities that aren't obvious. Also, a specialist in infectious diseases could provide another perspective, especially if you're concerned about an ongoing viral impact.
Expanding the types of specialists you consult could open up new avenues for diagnosis and treatment. Also, consider revisiting your current care strategies like getting a second opinion by another dermatologist or getting retested for herpes with a Western Blot test — sometimes a small adjustment can make a big difference.
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Hey @Nanny — That sounds super tough, and I'm sorry you're going through this. A month is a heck of a long time to deal with such annoyance, especially with the itch and pain you're describing. It's good you're on antivirals and supplements, but if the rash isn't improving, it might be time to circle back with your doc. Sometimes, a different approach or medication might be needed to tackle persistent symptoms. Also, the fatigue and nausea you're experiencing could be side effects or related to stress from dealing with this. Hang in there, and keep advocating for your health!
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Hey @JJlove and @ashleytiffania,
I totally get where you're both coming from. Constant outbreaks are tough, and it sounds like you've been dealing with a lot. JJlove, the ongoing prodrome symptoms sound frustrating, and ashleytiffania, that middle-of-the-night itching sounds pretty unbearable. I'm so sorry!
Both of you mentioned factors like stress and possibly being immunosuppressed. They can absolutely trigger more frequent outbreaks. The idea of cutting out high-arginine foods like chocolate might help, as arginine can fuel the virus. And @AlliKat12's question is a good one. Have you tried antiviral meds? They can cut outbreaks by up to 80% (check out the free handouts here for more helpful data), offering some relief and potentially reducing the virus's activity.
Keep up with the sleep, vitamins, and maybe give those antivirals a shot if you're up for it. Hang in there, both of you.
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Hey there, @Peter P
It's great to hear you're looking to turn this challenging experience into something positive by helping others. @AlliKat12's approach of engaging in forums like this one is a fantastic starting point. Sharing your story, offering support, and answering questions based on your own journey can make a significant difference to someone just beginning to navigate their diagnosis. It's a gentle, yet impactful, way to step into a helping role without the pressure of starting a channel. This community thrives on mutual support and understanding, and by contributing, you not only aid others but also find a path to your own healing and peace. It’s a beautiful cycle of support where everyone benefits, including yourself. Keep embracing that positive mindset and seeking out those silver linings. Your willingness to help is already a beacon of hope for many.
Your big heart and willing spirit inspire me. Welcome!
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Hey @aphelognathus,
I feel you. What a journey you've had, navigating the complex waters of dating and intimacy with HSV. Your frustration and feelings are completely valid. It's especially challenging when facing misconceptions and stigma, even within communities you hoped would be more understanding. (Not to mention that 1 in 5 people in those groups have genital herpes, and 80% of them don't know they have it!) The struggle for sexual and emotional intimacy is real, and it's heartbreaking that herpes becomes a barrier to connecting with potential partners. It's unfair to bear the burden of someone else's actions, and the societal reaction to herpes can be negative. And there are so, so many people who are completely understanding and great about it — a lot more than it might seem at first blush. And yes, navigating rejection (or I like to think if it more as "mismatching") is just part of the process of finding those who you will click with on multiple levels.
By the way, since you mentioned you have genital HSV-1, recent research (2022) from the University of Washington will help put those transmission fears in perspective, particularly regarding genital HSV-1. Their study found that genital HSV-1 shedding declines significantly within the first year of infection, contrasting sharply with genital HSV-2's shedding patterns. Initially, genital HSV-1 carriers frequently shed the virus, posing a higher transmission risk to partners. However, by 11 months, shedding rates dropped from 12% to 7% of days, and even further to 1.3% after two years, much lower than HSV-2's consistent shedding rate. (In fact, most genital HSV-1 is transmitted oral-to-genital via oral sex; I spoke with Terri Warren about this and she said she hasn't seen any cases of genital-to-genital HSV-1 transmission in her clinic work.) This information might offer some comfort, showing that genital HSV-1's impact can change over time, potentially easing some concerns about transmission. I've also summarized a lot of helpful data to put transmission fears into perspective on the handouts that come with the disclosure ebook. Get them for free here: https://www.herpesopportunity.com/lp/ebook
Remember, there are communities and people out there who understand and accept you, herpes and all. It might take time to find them, but you deserve love and happiness just as much as anyone else. Your resilience and self-awareness are evident, even in the midst of these challenges. Keep advocating for yourself and seeking spaces where you feel seen and supported. You're not alone in this.
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Hey there @Surferdude3536,
Sounds like quite the confusing journey! With the symptoms you're describing and the variety of diagnoses from different doctors, I totally get how you could feel lost in all of this.
Herpes typically presents with blisters that eventually burst and scab over, and your symptoms don't exactly fit that bill, especially with a protected encounter and tests coming back the way they did. The high HSV-1 IgG level indicates exposure to the virus at some point, but it doesn't necessarily mean your current symptoms are related to that, especially since HSV-1 more commonly affects the oral area (genital HSV-1 is common, too, but mostly gets passed oral-to-genital, more rare to pass it genital-to-genital).
Skin conditions, especially in sensitive areas like the scrotum, can be tricky and sometimes take a while to resolve completely. It could be a range of things from dermatitis to a fungal infection, or just irritation from friction or contact with an irritant. It's great that you're seeking opinions from dermatologists; they're your best bet for figuring out skin issues.
If you're still experiencing constant irritation, it might be worth exploring other non-STD related skin conditions further or even seeing if there's an allergy or sensitivity at play. Sometimes, a change in skincare products, laundry detergents, or even fabric types can make a big difference.
In the meantime, try to keep the area clean and dry, avoid any potential irritants, and maybe use a gentle, unscented moisturizer to help with the dryness and irritation. And if you haven't yet, maybe a follow-up with a dermatologist or even an allergist could give you some more clarity.
Hang in there, and keep advocating for yourself with your doctors. Your comfort and health are important, and there's an answer out there for you.
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Hey there @KindaWorried,
I totally get how nerve-wracking this situation must feel for you, especially with anxiety throwing its weight around. It's super common to start feeling every little sensation in your body when you're worried about something like this.
First off, it's good you're looking into this and wanting to be responsible. HSV2 can indeed be transmitted even without visible symptoms, but you're right that the risk is significantly lower without an active outbreak (only a 4% chance per year for males even with no protection or daily suppressive therapy — read the free handouts for more). The IGg score you mentioned does indicate exposure, but it's also in that gray area where false positives can happen, especially with scores close to the cutoff.
The sensations you're describing could be a lot of things, anxiety included. Since it's only been a short time since your last contact, it might be too soon for typical HSV2 symptoms to show up if they're going to at all.
Many people find themselves in situations similar to yours and don't end up testing positive, so don’t worry yourself crazy (easier said than done, I get it). The waiting part is tough, but you're doing the right thing by paying attention and planning to get tested. FYI, IgG tests are notoriously not precise, so I’d consider the Western Blot, which is much more accurate. In the meantime, maybe focus on activities that help you relax and keep your mind off things.
If you need someone to talk to, reaching out here is a great step. And when the time comes, getting a test will give you the clarity you need. Hang in there, you got this!
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Hey there @Jayne00,
Gosh, that sounds like such a tough spot you're in. Two decades is a long time to deal with something like herpes, and it's a bit of a head-scratcher when it flares up after laying low for so long, especially when you're taking such good care of yourself. You're doing all the right things with your diet and supplements, and it's clear you're on top of your health checks.
Now, about these persistent flare-ups, they can be frustrating and, honestly, quite baffling. I'm not a doctor, but I've heard that sometimes the virus can get a bit more active without any clear reason why. It doesn't necessarily point to something as serious as cancer, but it's always good to keep an open dialogue with your healthcare provider about any concerns.
And the thing about antivirals, they're a tool in the toolbox, right? They can certainly be a game-changer for getting those outbreaks under control since they can bring viral shedding down a whopping 50-80%. I get your worry about resistance, but that's pretty rare with herpes meds. It might be worth discussing with your doc as a temporary measure, just to get some relief and get back to feeling like yourself.
Hang in there. These patches can be rough, but you're not alone. And remember, your husband's by your side through thick and thin, herpes or not. It's a journey you're on together. Sending strength your way!
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Hey @Bart 17,
Great news about your Western Blot results! Given that they came back negative for HSV1 & 2, it's a strong indication that your initial IgG test was indeed a false positive. The Western Blot is considered the gold standard for herpes testing due to its high specificity, so you can trust these results. In fact, it can detect HSV antibodies with a sensitivity of around 99.5% for HSV-2 and a bit less for HSV-1, compared to the standard IgG tests which vary in sensitivity.
It's completely natural to have your doubts, especially after the emotional roller-coaster of testing and waiting for results. But rest assured, the Western Blot at both 6 weeks and between 12-13 weeks gives you a reliable snapshot of your status.
Remember, testing can be a stressful process, and it's okay to seek peace of mind. But with two negative Western Blots, it sounds like you've done your due diligence. Take care, and don't hesitate to reach out if you need more support.
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Hey there @JRTEX,
That's a good question and it's important to understand the nuances of HSV transmission. If your partner has anal herpes (HSV-2, typically), the virus is primarily located in the area where they have outbreaks, in this case, the anal region. During an active outbreak or during asymptomatic shedding, the virus can be present in the skin cells of that specific area.
So, technically, if only the anal area is affected, the risk of transmission through vaginal or male genital contact is lower compared to contact with the infected area. However, HSV can sometimes be present in other genital areas even without visible symptoms, so there's still a small risk of transmission.
Safe sex practices, like using condoms, can reduce the risk of transmission, but they don't eliminate it completely since HSV is spread through skin-to-skin contact and condoms might not cover all affected areas.
If your partner is taking antiviral medication, it can significantly lower the risk of transmission by reducing viral shedding, anywhere from 50-80%. See the free facts handouts with the disclosure ebook for more: https://www.herpesopportunity.com/lp/ebook
As always, open communication about health and risks is key in any relationship.
Hope that helps!
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Hey again @indianajones,
No bother at all! It's great to hear your symptoms are improving and you're feeling more like yourself. 😊 About trigger foods, it's really about finding a balance that works for you. While some people with herpes find that certain foods can trigger outbreaks, this isn't the case for everyone.
If you're on suppressive medication and not experiencing outbreaks, you may not need to strictly avoid these foods. Alcohol in moderation and your vegetarian staples like soybeans and nuts can usually be part of your diet without issues. It's all about listening to your body and seeing how it responds. If you notice certain foods seem to coincide with outbreaks, you might consider reducing them. But if you don't notice any impact, there's no need to cut them out completely.
Always remember, each person's experience with herpes can be different, so what works for one person may not be the same for another. It's fantastic that you're taking steps to learn and manage your health. Keep up the positive attitude! 💪
Here's a helpful article on herpes treatment, which includes specifics on lysine/arginine: https://www.herpesopportunity.com/post/herpes-treatment
Take care and stay strong! 🌟
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Hey @indianajones,
It's normal to feel concerned if symptoms seem worse after starting Acyclovir. Remember, every person's body reacts differently to medication. During the first outbreak, symptoms can intensify before they start improving, even with antiviral treatment. Acyclovir works by reducing the virus's ability to multiply, but it might take a couple of days to notice a significant improvement in symptoms.
If you're experiencing increased discomfort or any worrying symptoms, reach out to your doc. They can give you personalized advice and reassurance based on your health history and current condition.
Also, try to stay as comfortable as possible. Warm baths, loose clothing, and pain relief medication can help manage the discomfort. Most importantly, don't lose hope; many people find that after the initial outbreak, things get much easier to manage after their body and immune system get it under control. This first outbreak is nothing like what the rest of them will be!
Take care and stay strong! Remember, this is a temporary phase, and you'll soon find yourself feeling more like your usual self. 🌟
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Hey there,
I'm sorry to hear about your ongoing struggles with outbreaks even while on valacyclovir. It can be really frustrating when it feels like the treatment isn't working as expected.
You're not alone in this experience. Some people do find that their symptoms persist even with antiviral treatment. It could be a matter of your body adjusting to the medication, or it might be that this particular antiviral isn't the best fit for you. And only 2 months in is still early days. On average it could take anywhere from 6 months to a year before the body has done its part to build up enough antibodies to have it under control. Medication just helps give your immune system an extra boost.
It's certainly worth discussing with your doctor. They might suggest increasing the dosage or switching to a different antiviral medication. There's acyclovir and famciclovir as other options, and sometimes a change can make a big difference.
Also, remember that managing stress, eating a healthy diet, and getting enough sleep can play a role in managing outbreaks. Keep taking care of yourself, and stay in touch with your healthcare provider about the best course of action.
Hang in there, and remember that it often takes a bit of trial and error to find the best way to manage herpes. You're doing great by seeking help and staying proactive about your health. Keep it up! You got this.
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Of course! In fact, this experience can help you deepen your relationship to yourself and what's true, stripping away the BS and revealing the true you. This process can also help you find a partner who is truly right for you. Herpes itself doesn't do that, of course, but embracing the honesty, vulnerability, humility, and even sexual empowerment (ironically) that a herpes diagnosis can bring can truly be an opportunity. And ultimately it's all about the perspective you choose. Herpes can be a dead end. But it can also be an opportunity. And so much of which way it goes is up to you. And that's empowering.
"Whether you think you can or think you can't, you're right." — Henry Ford
Here's a post about the choosing of perspectives: https://www.herpesopportunity.com/post/herpes-is-not-an-opportunity
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Hey @LosingHope,
Man, I hear you. It sounds like you're in a really tough spot, and I'm truly sorry you're going through this. Let's break this down a bit.
Firstly, your physical symptoms are concerning, especially the sweating and weight loss. @iwanthope is right, this might not all be about herpes. It's crucial to see a doctor for a full check-up. They can help figure out if there's something else going on health-wise. Herpes can mess with your head for sure, but it usually doesn't cause symptoms like excessive sweating or drastic weight changes.
About the herpes part, I get that it feels like a huge blow. It's normal to feel upset and isolated, but know that you're not alone. Many people live with HSV and still have fulfilling lives and relationships. So, so many people. When I first got herpes, I thought it would be the end of my romantic life. Now it literally has done nothing to block me from romance; if anything, it's propelled me deeper into vulnerability and knowing myself. And the way through it is about managing the condition and understanding it better so the worst-case scenarios and worries can be put in context. Therapy could really help you deal with the emotional side of things. Talking to a professional can give you tools to cope better and start rebuilding your self-esteem. I also offer one-on-one coaching if you would like to consider that. Details here: https://www.herpesopportunity.com/lp/herpes-coaching
For your mental health, connecting with others in similar situations can be a lifeline. Keep reaching out here or consider joining a support group. It can make a huge difference to talk to people who get what you're going through.
Lastly, about your ex and your kids — that's a complicated situation. It might be helpful to seek legal advice to understand your rights and responsibilities, especially regarding the kids. For the emotional part, again, counseling can provide some guidance.
Remember, this diagnosis doesn't define you. You're more than this. You've got strengths and qualities that are valuable and important. Keep fighting, and take one day at a time. You're stronger than you think.
Sending you strength and support. You can get through this. 🙏💪
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Hey there @indianajones,
First off, I'm sending you a big virtual hug. 🤗 It's totally normal to feel overwhelmed and scared after a herpes diagnosis, especially during your first outbreak. Remember, you're not alone, and it's okay to feel all these emotions.
It's great that you have support from your partner and parents, even though it's tough for them too. As for the tension with your partner, it's natural to have mixed feelings. Give yourself time to process everything. Communication is key here; talk openly with him about how you’re feeling.
About the pain and discomfort, Acyclovir usually starts to work within a few days, helping to reduce the severity and length of the outbreak. Each person's response can vary, but it's often quite effective. If you're still in pain, don't hesitate to talk to your doctor about pain management options.
Regarding suppressive therapy, it's something you can discuss with your doctor after the initial treatment. It’s usually considered if you have frequent outbreaks, but it's always good to get personalized advice based on your specific situation. Daily suppressive antiviral medication can reduce transmission by around 50% and reduce the frequency of outbreaks by up to 80%, so it works very well! For a summarized overview of all relevant data and facts in these free handouts: https://www.herpesopportunity.com/lp/ebook
It's tough to miss classes, but your health is super important. Maybe you can reach out to your professors or university support services to explain your situation and get some accommodations.
Lastly, remember that having herpes doesn't define you or your worth. Many people live with it and have fulfilling lives and relationships. It's just a skin condition, and with time and support, you'll find your way to cope with it. Stay strong, and don't hesitate to seek help when you need it. 💪
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Hi @RD2024 — Herpes doesn't cause back pain per se, although some folks have nerve pain in their upper thighs/butt area when the virus "wakes up" after hibernation and starts to travel from the base of the spine (where it hibernates) through the nerve ganglia like the branches of a tree to the surface of the skin (where the viral shedding and potentially the outbreak would occur). The pathway it takes will determine where the nerve pain happens for some people. The frequent urination thing wouldn't be a symptom of herpes/HSV-1 as far as I'm aware.
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Yes, of course you still disclose, even if it's a one-night stand or casual. Why? Because they deserve to know the (low) risk and make a decision for themselves. And even if it's one night, it's still an incredibly intimate thing. You still want to have a foundational level of respect and trust for this person, even if only for one night. And you would want and expect the same if the roles were reversed, right? What if the other person was thinking the same way and they had a different STI that you'd rather not add to your collection? This video might help: https://www.herpesopportunity.com/post/casual-hookups-with-herpes
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Oh don't paint yourself into a corner thinking that way! You are still as much of a real man as you ever have been. Herpes doesn't change any of that. Notice you're saying these things as if they are true. They certainly don't have to be true! And I totally get feeling this way. I certainly did when I first got herpes ... but don't let how you feel now impact your expectations of the future. Your future is what you make it. And this experience can indeed make you a stronger, more vulnerable, humble, and yes, lovable you.
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Hey there @iwanthope,
I totally get how tough this must be for you. Feeling isolated and struggling with self-esteem after an HSV-2 diagnosis is something many people go through, so you're definitely not alone in this. In fact, I felt the same way when I first got herpes. I always struggled to connect with women, feeling a big lack of confidence. Then I got herpes and felt like that was an absolute brick wall to any future intimacy. But I was so, so wrong. It actually was a doorway to deeper connection for me. Not the herpes. But the vulnerability that came with it. As Brene Brown says, vulnerability equals connection. That's been so true in my experience. I doubt I would have met my wife and been capable of falling in love the way we did if it wasn't for the vulnerability and connection we experienced together through the disclosure and opening up to each other.
Also, it's not selfish at all to share your feelings and seek advice. That's what communities like this are for. It's important to talk about what you're going through, and this is a safe space to do that.
Regarding your experiences with dating and intimacy, it's completely normal to feel apprehensive about opening up to someone new about your HSV-2 status. But remember, having herpes doesn't make you any less of a man or unworthy of love and connection. It's just a skin condition, and it doesn't define who you are as a person. It's such a non-issue for most people on a medical level, which means most of the issues that arise are based on perspective and self-worth. And those can change.
You mentioned feeling hesitant to disclose your situation due to fear of rejection, and that's a common concern. However, building trust and a deeper connection can sometimes make it easier to share your status. It's all about finding the right time and the right person who understands and respects you. Check out the free e-book here for more on that: https://www.herpesopportunity.com/lp/ebook
Also, your mental health is super important. If you're feeling down and crying often, it might be helpful to talk to a counselor or therapist who can provide support and strategies to cope with these feelings. I also provide one-on-one coaching: https://www.herpesopportunity.com/lp/herpes-coaching
Remember, many people with HSV-2 lead fulfilling romantic lives. It's about finding someone who appreciates you for who you are, beyond the diagnosis. And in the meantime, focusing on self-care and activities that make you happy can really help boost your self-esteem.
Hang in there. It's tough, but you're not alone. Keep reaching out and connecting with others who understand what you're going through. You've got this! 💪💖
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Hey there @Em298,
It's really tough to hear that you're going through this. Remember, you're definitely not alone in this journey. It's okay to feel overwhelmed, and it's great that you have supportive friends.
Your feelings about telling your parents are completely valid. It's a personal decision, and only you can gauge how they might react. If you're managing fine on your own and don't see any benefits in telling them, it's okay to keep this to yourself for now. But never underestimate the power of a parent's unconditional love! All of my family was super supportive of me when I told them; I cried in my mom's lap in the parking lot of her job for a couple of hours right after I got the news.
It's fantastic that you're finding support from your friends. In times like these, having people who understand and stand by you makes a big difference. And remember, the discomfort and itchy feeling won't last forever. There are ways to manage it, and it does get better. The main defense you have is taking care of your body so your immune system can naturally suppress the virus. That'll take some time before it has it under control (approximately 6 months to a year), and taking daily suppressive meds can help if you find yourself having more outbreaks than are manageable.
As for @AnnieO's experience, it's reassuring to know that others have been through similar situations and have found ways to cope and live fulfilling lives, isn't it? Her advice about not letting this define you is spot on. You are much more than this diagnosis. And the suggestion to stay connected with supportive groups and seek medical help if needed is really wise.
Lastly, focusing on your health, both physical and emotional, is important. Whether it's through medication, exercise, or counseling, taking care of yourself is key.
Sending you a virtual hug and lots of strength. 💖 You got this!
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Hey there @here2learnm0re,
I'm really sorry to hear about everything you're going through. Losing your husband and then dealing with a new HSV-2 diagnosis is a lot to handle, and it's totally okay to feel overwhelmed and confused.
Firstly, it's important to know that herpes symptoms can vary a lot from person to person. What you're describing could be a continuation of your initial outbreak, or it might be a new one. Sometimes, symptoms like itching, burning, or even the sensation you're describing can happen without visible sores. Stress, illness, and even menstrual cycles can trigger outbreaks, so it's possible that your body is still adjusting to the virus.
It does sound more like this is a new exposure rather than something you've had for a long time without knowing. It's not uncommon for symptoms to show up weeks or even months after being exposed to the virus.
I get that you're feeling a lot of emotions right now, especially with the fear of being alone and not being accepted because of your diagnosis. But remember, herpes is a common condition and having it doesn't change who you are or your worth as a person. Many people live full, happy lives with herpes, including having loving relationships. It might be helpful to watch the "Inside Coaching" videos here to practice getting into a positive perspective and finding the opportunity in this (as strange as that sounds, I get it!)
As for supplements, it's great that you're taking Valtrex as prescribed by your doctor. Some people find that Lysine supplements, zinc, and vitamin C can help, but it's always best to talk to your doctor before starting any new supplements. Every person's body reacts differently, so what works for one might not work for another.
It's really good that you're reaching out and trying to understand more about your condition. But don't let it consume all your time and energy. Maybe consider talking to a counselor or therapist (I also offer one-on-one coaching), especially with everything you're going through. Getting focused support can help you process your emotions and guide you in coping in a healthy way.
You're not alone in this. Many people on this forum and elsewhere understand what you're going through and can offer support and advice. Take care of yourself, both physically and emotionally. You got this!
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Oral HSV-1 to genital?
in Herpes question(s)
Posted
Hey there @juicebox8787!
Your situation sounds really challenging, navigating the complexities of HSV1, especially with such a long history both orally and possibly genitally. It’s quite the journey you’ve been on with your partner, and I can imagine the frustration and confusion you're feeling.
First off, it’s true that having an established oral HSV1 infection typically provides some immunity against getting the same virus genitally due to the body's production of antibodies. However, there are exceptions, and it seems like your situation might be one of them, especially considering your partner's history and your symptoms. Autoinoculation (spreading the virus from one part of your body to another) is less common but not impossible, particularly if your immune system is compromised in some way. More than half of all new genital herpes cases are via oral sex when the partner with a history of cold sores goes down on their partner and passes it that way.
Negative swab tests, especially when not done during an active outbreak or on a lesion with fluid, can sometimes not capture the virus, leading to false negatives. It’s a tricky virus to pin down without the classic symptoms or during asymptomatic shedding periods. The tricky thing is if you're not having a "swabbable" active outbreak, there's not going to be a way to truly nail down what it is since a blood test will only tell you what you already know: You have (and have had for many years) antibodies to HSV-1. So yeah, you're in the midst of an annoying gray area, lacking the necessary data to have a definitive answer.
Your proactive approach with antivirals is a good step, and it sounds like they’re helping somewhat, which could indicate a viral component to your symptoms. The odds and realities can vary so much from person to person. While reinfection in a different location is unlikely, it’s not out of the realm of possibility, especially in nuanced and individualized situations like yours.
Hang in there, and it sounds like you’re navigating this with as much care and attention (and patience!) as you possibly can. It’s okay to seek second opinions or additional tests if you’re not feeling right. Keep us in the loop about further developments, I know it's a tough and frustrating place to be.