whitedaisies
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Everything posted by whitedaisies
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Well then lots of hugs for you!!! I get really down too some days (ok a lot of days). Someone on here thought he had ghsv1 too and it turned out to be prostatis I believe and a bacterial infection. See if you can search under Frenchman. See if it is similar. I went a year and a half without sex and then couldn't wait any longer. But sex always gives me anxiety before and after. In the moment I am okay. But I haven't had much I am afraid. Fond memory for me too lol. Let's hope it won't be too distant for much longer. I would say after a year I noticed a difference. The constant burn of my nerves was gone. And then just appeared frequently during prodome and then goes away. Now I will get prodome and then red bumps. Tiny that barely break through the skin. Mostly show up on my left thigh and lower back. Nothing on my vagina. Yippee!!! Although I get some nerve pain there. Do you go commando as much as you can to avoid any rubbing or further irritation?
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I seriously would push to do it longer. I noticed a difference after a month when I doibled up. I still had symptoms but the burn went away. I am better after two years so there is hope for you. I just have frequent prodome and ob which never have fluid only red bumps and sometimes vasculitis. PM me if you need any support or we could use this thread. You will get better over time. It may just take a longer time than most. May I ask are you having sex and have you passed this on? I think you mentioned ur gf had oral hsv1. Assuming she has oral, I assume she can't get it fenital. Just wondering. With my constant issues, transmission is such a big worry for me. Hugs!!!!
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9 Months Since Herpes Infection, Irritation Won't Go Away
whitedaisies replied to NPM's topic in Herpes question(s)
I can say I am about $5k plus Plus time energy etc Maybe try nerve meds to see if it helps. -
I am sorry you are struggling with this. I am in the exact same boat at two years in. It's very frustrating. I can totally empathize with you. Viruses can trigger autoimmune stuff and also vasculitis which could be the red dots on your penis. I get those between my thighs sometimes if I have prodome. How long did you try the double dose of valtrex. Give it at least a month or two.
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How to NOT think about Herpes
whitedaisies replied to Elise1977's topic in General herpes discussion
love him enough to let him love you -
How to NOT think about Herpes
whitedaisies replied to Elise1977's topic in General herpes discussion
@bird do you have ghsv1 or 2? -
9 Months Since Herpes Infection, Irritation Won't Go Away
whitedaisies replied to NPM's topic in Herpes question(s)
@williteverstop Will do U have hsv1? -
Questions about sex after first herpes outbreak??
whitedaisies replied to JJJ2015's topic in Herpes question(s)
The most it should be is two weeks. Have them call the lab to make sure they didn't misplace the the specimen. -
So tired of itching (HSV2)...a mini rant
whitedaisies replied to TryingtoReach_Peace's topic in General herpes discussion
Yay you!!!!! Xo -
Continued good news on herpes vaccine Gen 003!
whitedaisies replied to StillAwesome's topic in General herpes discussion
At least u have hsv2 and that's where all the money goes. I have hsv1 constantly and I have to wait even longer for a vaccine. It's depressing. -
So tired of itching (HSV2)...a mini rant
whitedaisies replied to TryingtoReach_Peace's topic in General herpes discussion
Do better. Lol. That's shaming!!!! You are doing great!!!! Feel sad, mad, whatever you need. Just don't let it consume you. Eventually it will settle unless you have autoimmune issues. Keep your stress levels down too. I always have sthng I do when I get down about it. I have my favourite Starbucks drink or I snuggle with my dog or I vent on here. You will find your way back. -
So tired of itching (HSV2)...a mini rant
whitedaisies replied to TryingtoReach_Peace's topic in General herpes discussion
We are always here. My opinion is be kind to yourself and reduce any suffering you can. A pill is a pill and that's all it is. It doesn't mean you didn't try hard or failed. Taking it in your case means I am going to be kind to myself and help reduce my suffering so I can focus on things that matter to me most. I wish you well and hope Antivirals help you. -
So tired of itching (HSV2)...a mini rant
whitedaisies replied to TryingtoReach_Peace's topic in General herpes discussion
Take the ob dose for a bit the Dr gave u then go on suppressives for a bit....I would say a few months....once you are feeling good for a good couple of months...if you want, start weaning off them. Physical pain and discomfort makes it challenging for us to heal emotionally. Give your body a break for a bit so you get in a better head space. No rush to get off meds. Don't put unrealistic pressure on yourself. I imp the key is to get your body feeling good and everything else you can work on. Good luck -
So tired of itching (HSV2)...a mini rant
whitedaisies replied to TryingtoReach_Peace's topic in General herpes discussion
Agreed. Start valtrex Why suffer? Hugs -
What do your lesions look like? White pus filled?
whitedaisies replied to whitedaisies's topic in Herpes question(s)
My constant nerve pain is gone too but it did a number on my central nervous system. It has just gone haywire. Bumps never hurt and honestly I doubt they are very contagious but the numbness or pain or creepy crawling feeling before is so scary and because of the frequency it just freaks me out. Also I get ob everywhere from waist down. It never stays in one place so then every bump is examined. Some may be h some may not be. I dunno. Now I going to go to this rhumatologist and I hope they listen to me. I am so tired. I need some days/months without h so I can feel normal. Anyway good luck to both of us misfits and any other h misfits. This is rare so it's nice to know not everyone goes through this. I wouldn't wish this on anyone. -
What do your lesions look like? White pus filled?
whitedaisies replied to whitedaisies's topic in Herpes question(s)
Thanks. I need some reprieve I am going stir crazy. Anytime I get emotionally better and of physical symptoms get worse I just relapse into depression. If I can't control these symptoms I am never going to get out of this funk. I am finding partners that will accept my h. I am fine in the moment of sex....it's the constant hourly daily reminder. Hey you have this thing. I would like to not have physical symptoms to remind me all the time. Dealing withh h is hard enough with an ob here and there but constant. It's such a mind fuck -
What do your lesions look like? White pus filled?
whitedaisies replied to whitedaisies's topic in Herpes question(s)
These people have herpes as well What is LDN? Have u tried it? -
What do your lesions look like? White pus filled?
whitedaisies replied to whitedaisies's topic in Herpes question(s)
Good luck Please keep me posted if doc recommends alternative treatments for h. I see a rheumatologist November at the end. Antivirals don't workfor me -
What do your lesions look like? White pus filled?
whitedaisies replied to whitedaisies's topic in Herpes question(s)
It's been two years for me this December and w only pimple like lesions most of time with hsv1....they never swab positive. But whatever. It's unusual to be like this and sometimes I wish I could have h like everyone else. Why do I have to be plagued w constant nerve pain and ob and chronic fatigue and whatever immune issues I have. I lived a good life respecting people and doing good. I know this is not punishment and I am whining but seriously!?!!!!! How much can I take!!! -
What do your lesions look like? White pus filled?
whitedaisies replied to whitedaisies's topic in Herpes question(s)
I wish you well I don't even have hope for an immune based vaccine. My immune system is shit. Can't imagine a vaccine would help me. Antivirals don't. I am such in a pity party today. One bad break up after another plus physical and emotional bullshit. I am so done. -
What do your lesions look like? White pus filled?
whitedaisies replied to whitedaisies's topic in Herpes question(s)
I think mine just start w white pus. I don't get ulcers or cuts. It's just hard then to know what's a pimple and whats h. It's so damn annoying. I hate this virus. It has ruined my health.