whitedaisies

You don't fight ignorance with more ignorance. You fight ignorance and stigma with knowledge. They are two different viruses. Different percentages of the population have each virus. You are more likely to encounter a partner with hsv1 than hsv2. Those are just facts. Hev2 doesn't like the mouth. Hsv1 can live both places better than hsv2. There are so many differences. Yes they are all cold sores but it's not all that simple. I couldn't disagree more with your statement. I am not saying one is worse than the other. So if I have hsv1 and my partner has oral hsv1...you are saying it's not important to know type? Of course it is....his risk is so much lower to contract it genitslly than if I had hsv2. He has the same virus as me. This argument is really silly

Knowing the type is important to know how to protect your partner. This is vital information. Typing will not take away stigma...only social change and education can do that.

Inflammation is response to infection. It's the body's immune response Hsv is an infection wnd if the body overacts to response then it will cause inflammation. I am not saying it happens to everyone but would make sense in my case.

So what do I do? If you were me what would you do? I don't know how to live in this ambiguity. If I am a risk of I am not. What do I say to a sexual partner? How can I stop fearing sex? I just get lost in the panic and anxiety of it and I know what it feels like to get it (or think u get it) so I don't want to do that to anyone. I dunno lost still.

No biopsy done. I can't get to a derm when these damn things show up and honestly they look harmless. I just Swab for h...witht no typical kesions they come negative. I awab internally too and negative I am wondering if I am having repeated shingles ob w minor rash. These last few days I have had the pin prick feeling all over my body then terrible burning nerves then pain so bad clothes hurt on my skin With no external kesions that are pus filled. What am I supposed to do. I get kesions just red bumps. I just feel trapped. This rhumatologist seems she is trying to get to the bottom of it. But in the end getting a same day appointment when this stuff comes up is impossible. I kind of disclosed to this guy I am seeing. Not ready for sex at all as now I am petrified of it on a physical level and emotional level based on some horrible past experiences. Didn't get the best reaction but not a negative one either. I just said I don't know what I have and he didn't believe hsv1 could be in the genitals. But he's been very supportive with my health and emotional health and I keep trying to push him away and he's not going anywhere. I think it's bc he thinks I don't have ghsv1. I told him positive blood for hsv1. I don't know what to do about it? About anything? Health deteriorated, mental health deteriorated, finances deteriorated. I did everythig right for 40 years and one minor virus or whatever it is is impacting my life so terribly. I guess if everything else was going well it wouldn't be as impactful. I have two swabs to send in for testing. I am petrified they will come up positive and petrified they will come up negative. I can't win.

Yes come positive hsv1 blood which so does 80 percent of population I don't even know what to disclose? What do I say? I think I have ghsv1 but can't prove it? I have oral hsv1? I have hsv1 don't know where? I am in a circle with it all the time. And honestly if I had this shot happen and it go away with no positive swabs I wouldn't feel so bad about it. I just feel like I am lying if I don't say I have ghsv1 but then if I say I have it I don't know that either. I don't know how I get to the root of that. And saying u may have it u might as well say u have it. Anyway I wouldn't be so worried about disclosure but I so miss the intimacy of sex. The acrobatics of it are fun too but it is the intimacy I crave. I dunno. I just don't seem to be able to win at anything. It's just here's the worst case scenario and then the second worst case scenario and then pick one lol I know ur health struggles are hard but at least U have a diagnosis and u are working to see what things work for u. I have no idea what's going on and I think it's chronic h but no proof. Wtf do I do with that?

If one has repeated ob it can cause it. Didn't ask her She is checking for thyroid and bone marrow issues which she doubts No to lupus and no to behcets no to ms

Repeated infection can cause high inflammation. I think I saw this on mayo clinic website I would think if ones body reacts well to virus then inflammation will be low and may only appear during an ob But if there is chronic and repetitive ob it can cause elevated inflammation levels

No one ever thinks it's herpes and honestly I have no swab proof and no negative to positive blood test. So I am stuck unless I can get some positive swabs which is high unlikely after this long I don't know what she tested for besides what I told you. They are trying to figure out what is causing high inflammation. I think its chronic h infection.

I am suicidal again. Fuck

Went to rhumatologist. Says doesn't think fibromayalgia. Don't know why. Testing for thyroid issues and bone marrow disorders. I have abnormally high inflammation which I think is from chronic hwrpes outbreaks. Do you have high inflammation levels? I have weekly ob that never have lesions. Oh tiny bumps like so small. Nerve pain is horrific before it comes. They itch before break thru skin. Don't hurt and can't feel them til they are gone. They show up everywhere as I think I have it disseminated. I don't know why. Must have some underlying condition. It's been two years. Depression worse. Synptoms haven't changed and have no diagnosis.

Wish I could get on it. I can't even convince anyone I have h and I have non stop sympyoms and bumps. I am so tired of it all. Good luck and keep us posted.

Ask the doctor for antiviral perscription medication like valtrex. Good luck. I hope it gets better soon for you. Hugs

I always tested negative with the Elisa blood test. Apparently it can be wrong in approximately 10 percent of cases with false negatives. If you want no doubt, do the western blot. Mine came up positive after 3 negative Elisa tests. Good luck

I always tested negative with the Elisa blood test. Apparently it can be wrong in approximately 10 percent of cases with false negatives. If you want no doubt, do the western blot. Mine came up positive after 3 negative Elisa tests. Good luck

Yes. It sucks.

Thanks @sil88 Reading ur post helped. I am trying. Some days better than others. I guess what everyone worries about is a sexual partner that accepts them and I have that.

Well I am posting for me....I just need to write and hopefully it helps...hopefully someone will read it and respond and something will click for me. I have posted before many times. Still stuck. I have hsv1 determined by blood....can't get a positive swab orally or genitslly but I know what it is. Anyway think it's triggered fibromayalgia which I am trying to get diagnosed this Monday at rhumatologist. They have ruled everyrhing autoimmune out. I will ask them to look into behcets again bc of my numerous negative swabs. Anyway so I am taking famvir and am slowly having thinning hair. Scared to stop Antivirals though bc I have a partner now that I see infrequently. His status is unknown. Petrified of doctors and I have known him for years so I know he doesn't have hepatitis of hiv which I am petrified about. I am scared to stop antivirals bc I believe I have hsv1 in multiple places. Also still afraid to have sex which sucks. I was really enjoying my sexuality before this...getting my sexual bucket list things crossed off and all I can think about is what if I gave this to someone and then also since my body handled this so poorly....what happens when I go off antivirals? I miss my old sex life of feeling carefree. I don't know when I am going to stop mourning that. Wished I got hsv episodically infrequently. I just feel little hope that anythig will change. I dunno. Pathetic post but I just feel every turn is shitty.

Sounds like behcets. Open ulcers around vulva is a symptom as well as others u describe

It's not a big deal and if they make it a big deal it means they don't take their sexual health and your sexual health seriously. It's a reasonable request to ask someone to get tested. I think a lot of people don't want to get tested bc they don't want to know. Ignorance is bliss. I would say they lack sexual maturity. Dump them if they won't do it.

Good for you!!!!

God!!! You are so lucky no outbreaks!!!

Highly doubt anyone got anything from that. They likely kissed quite a few people with hsv1 before with no disclosure and same risk. You likely shed very little since u have no ob (lucky you). Glad your friend was ok about it. Listen to Dancer's advice. She's really helpful. You are not horrible for doing what you did. You didn't kill anyone. Yes disclosure is important...odds are they likely have hsv1 anyway. Take from this experience and move forward.

When are they going to come up with sthng new to fight this virus. It's ridiculous. Eczema likely increases risk if h have it in the boxer short area due to breaks in your skin that the virus can pass through. Don't know if other stds increase the risk but I would think if your immune system is lowered bc of other stds then it theoretically would increase risk. But likely not through the same methods as herpes.

@hippyherpy how do you know people are disclosing to you? With casual sex I assume it's a brief discussion of stds. I just wonder if you are worried to get hiv or hepatitis. I worry about getting something worse and that someone isn't disclosing to me or maybe doesn't know they have it. Wanted your opinion. Thanks