Want to take a stand with us? The Shameless Herpes Movement!

[Kristin (breatheandletgo)]

I am totally in, A. You know that.

 

By day (when I'm not wearing my Wonder Woman costume) I am on the national marketing team of a publicly traded company. I serve as our company's Senior Viral Marketing/Social Media Specialist. I have access to media outlets, experience writing and executing press releases on a national scale and success securing interviews with publications like USA Today, The Wall Street Journal and others you might recognize on behalf of the professionals at our firm. I work closely with the PR firm our company retains to support me on big projects and there are always favors I can call in. Sooooo....I can probably help a little with the publicity part if you want me to. I develop strategy for launching marketing campaigns of all kinds pretty much every day.

 

I can also help with design, web or graphic, edit photos, etc. whatever you need, A.

 

Oh, and I don't give a f**k who knows I have herpes, so I am not worried about championing the cause. I'm sexy and I know it. ;)

 

Kristin

[Kaande05]

Haha Kristen you sound totally awesome! Love how positive you are!!

 

A. I am in. As I have stated many times. I was wondering when we can start directing people to the profile site? I am already a part of a secret fb page for people with herpes, and I can link the site on the fb page if you are ready... I know things are for now being done manually and I don't want to bumbard you with profiles if your not ready yet!

 

I too would love a high number to strive for. I definitely will feel more comfortable with more people but I also wouldn't want to wait 2 years+ to get the number.

 

I don't know anything about computer programs to help with design or editing of profiles or whatever you wanna call it so I can't help there, but if you ever need/want someone to stand beside you an be another "face of herpes" and do interviews and such then ill definitely offer to help!!

 

I'll be sending a request for the fb group now!!!

[Kaande05]

Anyone else have problems getting into the Facebook page?!

[mr_hopp]

It's invite only, so message me your Facebook page and I can add you to our VIP list. ;)

[Kaande05]

Ahh ok!!!

[mr_hopp]

Oh, and Kaande, definitely feel free to post the shamelessness project to your other facebook group. I'm more than happy to go manual until we can either find someone (Kristin?) to automate it or raise enough funds to hire a programmer to do it. But definitely feel free to post it! And I haven't gotten your submission to the site yet ... ;)

http://herpesopportunity.com/the-shamelessness-project/

[Kaande05]

Ok! I have read the admins of these groups personal messages. I'm getting a little frustrated that I have to do that first. Because they state in their membership agreements that the pages are not used to promote other sites, groups, or memberships. One is a cure research page and one is called national HELP. I think both are headed up by the same group of people because their rules seem to read the same.

 

My letters went something like this......

Hi I'm a member of one of your fb groups. ( inswrt group name)I'm contacting you in regards to something I would like your group to know about. There is another support forum which as if right now is not a Facebook forum. It is from herpeslife.com. I don't know if you have ever had time to look into it, maybe your already a member but I just want to explain what we are trying to accomplish.

 

The group was created by Adrial Dale. He has done some radio interviews, has YouTube videos and I tunes podcasts on herpes and coping with it. Anyways we are in the beginning stages of creating something amazing that will hopefully shatter the stigma if herpes. Our plan is to make profiles of ourselves and how herpes and the stigma we faced has affected us and what we can achieve if those barriers are broken. The profile pics will be blurred until a certain number is reached. we are so far deciding on 10,000. once it is reached the pictures will be unsmudged and everyone will be able to see them. This will be eventually going world wide and we will be talking about how to promote this " stepping out of the shadow of shame" idea that we have, starting in November.

 

The idea behind this is basically strength in numbers and to show the world how prevelant this is and how we are not alone. I think it will bring everyone closer and we will really be able to make a difference in the minds of those H- people who don't understand what we go thru.

 

This is NOT something that we are trying to profit off of. No one has to pay or donate to anything. I just wanted to know whether or not I can post something on your Facebook page about this.

 

If you would like I can send you a copy of the link so you can look for yourself or I can get you in contact with our groups creator.

 

Once again this is not some kind of scam thing. No one has to commit to anything. I can also try and answer any questions or concerns you may have! Thanks for taking the time to read thru this!

 

Anyways

Hopefully I even explained our mission correctly And I included everything correctly on things A has done.... I'm hoping to hear back from them soon. It's just frustrating that these groups are hiding themselves within their groups! They don't want to expose people to other support groups, seems counterproductive if you ask me... ! I'm starting to feel like this may be more difficult then i anticipated! I also think that we need to come up with something to forward to sites... Something that people will stop to read that doesn't come across as spam!!!

[Kaande05]

Heard back from 1 of the admins and as I thought they did say NO! So should I do something from here on out?! Write everyone individually? Leave it alone? Ugh I

[Alyssa (formerly abby83)]

I haven't been on here much lately so I just saw this thread and I simultaneously want to shout "I have herpes!" from my rooftop and vomit at the same time. I actually almost "came out" to my Women's Health class last week when we were talking about STIs but I couldn't bring myself to do it. Fuck it, count me in. I'm so over the shame and embarrassment I've felt for the last 4 years about this. I think I would feel more comfortable with more people though. I agree that 10,000 still makes us seem like a minority. But either way, I want to do whatever I can to help. I'll set up my profile in a bit and get on the facebook page. Yeah I'll probably vomit first... but the nausea will pass. Let's do this thing!

[mariah1237]

I'm new here but I definitely would like to be apart of a great project

[JC81]

I always see cold sores on my friends and I do tell them it is herpes. They tell me its not...I tell them to do the research because a cold sore is a nice word instead of saying they have lip herpes. But its herpes on the lips DUH...people are misinformed. I just tell it what it is. Don't mean to be a bitch to my friends, but that's what it is. LOL

[Kas22new]

I'm new too this website and have so far just been cruising around it and checking things out but honestly I'm so excited to actually see how many people feel the same way I do. As of right now I live In a small town and since I've gotten herpes I haven't been to completely private about it cuz I was honestly curious of what people's judgements and thoughts may be. And it just turned into a horrible disaster for me. I informed the wrong person whom then informed everyone else and because no one has knowledge of what it actually is and how it's not that bad. People look at me in shame most the time. So I'm so for everything you guys are wanting to do and it makes me very excited. I'm planing on moving to a bigger city. Where small town country life isn't tearing down my image of my self. And I can speak up and be part of something that you cant be where people have been brought up to judge u through what they think is right. So I'm so excited to have found this website and I hope people will help guide me to what is new and going on :). Absolutely love this particular blog ;)