mr_hopp

Now that it's a few weeks later, how are you doing now, Alone? Just so you know, the vast majority of stories I've heard, regardless of how often/severe the first outbreaks are, within the first 6 months the body's antibodies take over the virus and have it under control. From there on out, outbreaks get less and less severe and frequent.

Hey TheFoundOne! Here's something on the difference between IgG and IgM: http://www.cdc.gov/lyme/diagnosistreatment/LabTest/TwoStep/WesternBlot/ That is strange that it says HSV 1&2 and not separated out. That's the whole point of type testing so you can know which you have (or both)! Have you found anything else out since originally posting this? (Sorry I've been out of commission putting on the Herpes Opportunity weekend seminar. I'm back now!) ;)

Fuck it, here are some other goodies. I can't help it. ;) Notice, too, that these quotes apply to everything, yet when you think about them in terms of having herpes, they are right on. "Only love can break your heart." — Neil Young song "Speak of your experiences. It normalizes it for the masses." — Lee Harris "Worrying does not empty tomorrow of its troubles. It empties today of its strength." "We must embrace pain and burn it as fuel for our journey." — Kenji Miyazawa "Suffering is given to you that you might open your eyes to the truth." — Anthony Demello "The truth you believe and cling to makes you unavailable to hear anything new." — Pema Chodron "Change your thoughts, and you change your world." - Norman Vincent Peale "Somewhere someone is looking for exactly what you have to offer." "New beginnings are often disguised as painful endings." — Lao Tzu "Problems are a sign of life. The only people who don't have problems live in the cemetery." - Norman Vincent Peale

I have a whole treasure trove of quotes, but this is the latest one I found: "To get up each morning with the resolve to be happy is to set our own conditions to the events of each day. To do this is to condition circumstances, instead of being conditioned by them. Think positively and masterfully, with confidence and faith; and life becomes more secure, more fraught with action, richer in achievement and experience. Without hesitation treat people as if they are what they ought to be, and you can help them become what they are capable of becoming."

I read this quote at the Herpes Opportunity weekend seminar, lelani. Nice synchronicity. ;)

It's amazing how the mind works, huh? What you described here is a perfect example of a powerful self-fulfilling prophecy. I talk about it all the time on this site and beyond. If we believe we aren't worthy of love and acceptance, our mind will find a way to make us unloved and unaccepted. Period. I love that you can see that so clearly now. And I'm sorry it hurts. It is a powerful lesson that will most likely have you seeing a similar situation in the future in a more aware way. That's what this is all about. Not letting herpes develop into some bullshit story that holds us back from being lovable. Because in the end, yes, there are people out there who are ignorant or just plain scared of herpes and there are those who think of it as a simple skin rash, no biggie. Which one of those camps will we be in? That's our choice. How we look at the things in our life. And that choice reverberates across our relationships and how we experience our lives. That's huge. So pcvkak, sometimes our biggest gifts come in what seem to be our biggest suffering. And it sounds like you're on a good path. We're here for you as you continue down it. Know that. Much love. :)

Domh. You inspire me. When you wrote "In disclosing, I found relief in being myself," my heart melted for you. Yes, this is exactly it. What hurts the most is when we suppress who we are, thinking that now that we have herpes we can't actually be us. Not true. You're already seeing that. And yes, WOW, what an AMAZING mom it sounds like you have. You have so much support. That is beautiful. And what's most beautiful is that you're supporting yourself, too. Trust me, it gets so much better. And there can be a beautiful opportunity in suffering, what is available for YOU to get about YOURSELF. That you are beautiful and worthy of love and whole and complete. There's nothing wrong with you. That doctor in the emergency room represents the ignorant stigma. But you know better. You know you aren't disgusting. You know you are beautiful. Your ex leaving you high and dry is another manifestation of denial and stigma. I would imagine it has little to do with you and a lot more to do about his own relationship to himself. And hey, (I'm not religious, but totally accept people who are) I'm glad you feel supported by God, but I also want to give you the acknowledgement that YOU are making these decisions for yourself. God can't make you strong, can't carry you without YOU doing that for yourself first. So I'm proud of you for deciding to go about this in such a positive way, to take care of yourself. Know always that we are here for you if you need us.

I'm in the process of getting audio clips from participants and will be putting all of the clips together into one long testimonial. Can't wait to share what these participants are saying! :)

I like this conversation since I am a firm believer in the power of words. Words are containers for meaning and feeling. I think this is that it's less about "this word is better than that word" and more about "how do I feel when I say this word vs. that word?" Who knows, when I say "I caught herpes" I may feel better than saying "I was given herpes." For you, it could be just the opposite. Each one of us is completely different in how we see our world, and the words we use help to construct our experience of that world. You can look at this either metaphysically or psychologically; both apply. The more we simply pay attention to how the words we use influence how we feel, the closer we'll be to using the words that are most congruent to who we each are individually and how we authentically feel in the moment.

Hey mariii ... I understand the guilt in that (but you don't have to feel guilty; what is feeling guilty doing for you?). And I understand you waiting. Whether it's because of fear of rejection or that this guy doesn't feel quite right for you (yet or ever). And lively is right: The sooner the better if you feel like you can trust him with your vulnerability. It's a two-way street here. You don't HAVE to disclose to someone if you're not ready to and you're not having sex with them yet or exposing them to the risk of getting herpes. Practice talking about herpes more in general. Normalize it for yourself. Love yourself. Accept yourself. It's a beautiful process of healing and self-acceptance first, then to be able to share vulnerably with someone else you're interested in can be a beautiful opportunity for deeper intimacy instead of shame. It's never too late to disclose, just like it's never too late to love. And love goes both ways. To yourself first, then to him. Good luck, mariii! Keep us updated on what you end up doing and how it goes!

My girlfriend and I were together for 3.5 years, decided together to not use condoms but instead put me on daily suppressive therapy. She never got herpes. I've heard of plenty of couples out there who have been together for years and haven't passed herpes. And yes, stats are meaningless when you look at each individual person: you either get herpes or not. Very black and white. Something tells me that knowing you have herpes actually makes you more safe than the 80% of the people who have herpes and don't know it having sex thinking they don't have anything. Knowing we have herpes allows us to be more aware of the prodrome symptoms and communicate that with our herpes negative partner to keep them that much safer. And yes, your stats are correct: women>men is 4% chance of transmission with unprotected sex; men>women is 8% (more mucous membrane means more surface area for the virus to have access). With condom use, that percentage falls in half, and with daily suppressive therapy, that number falls another half. All in all, it's simply a conversation and decision to have between each couple and weighing the risks and fun of it all. ;)

So drained now after a long day, so this'll be quick ... Wanted to give a big, loving shoutout to our amazing growing community and quickly update you that day 1 is done and I'm blown away by our participants and what has already happened. Already huge shifts in their perspective and so much beauty in their shares and support for themselves and each other. We're building an awesome family here, y'all. I'm inspired to have another seminar pretty soon after this if people are up for it. Wow. So inspired. I could do this "work" for the rest of my life. :)

Oh, and Kaande, definitely feel free to post the shamelessness project to your other facebook group. I'm more than happy to go manual until we can either find someone (Kristin?) to automate it or raise enough funds to hire a programmer to do it. But definitely feel free to post it! And I haven't gotten your submission to the site yet ... ;) http://herpesopportunity.com/the-shamelessness-project/

It's invite only, so message me your Facebook page and I can add you to our VIP list. ;)

NOTE: If you haven't submitted your profile yet, here's the page again: http://herpesopportunity.com/the-shamelessness-project/ Shannon, I agree that we could get 100,000 or even 1 million (the million herpes march!) ;) with enough enthusiastic supporters AND I want to be clear that I need a lot of help from everyone in this community to make that happen. I hear that you're dedicated, Shannon, (feels good to hear) and I hear others sporadically chiming in, and I NEED to know that when we launch this thing (whatever our target number) that we have plenty of our people all over the place with equal enthusiasm with us getting that number ... and that everyone is dedicated to giving that kind of energy in calling places like Planned Parenthood, clinics and complementary safer sex/STD organizations. I feel 10,000 at this point is doable with the current amount of enthusiastic people behind it. And at this point, I set up the website all by hand and it's not automated. I want to eventually raise enough money before too long to automate the site so I won't be putting up profiles manually all the way up through the 10,000th one. SO ... WHO ELSE reading this thread right now wants to jump in to be at the forefront of this movement? It will mean printing off flyers that I'm going to be designing to hang up at all the places listed above and calling places to email them the flyer as a pdf, calling news organizations (I'm wide open to doing interviews for this), etc. As far as I see it, before we can REALLY launch this thing with a blitzkrieg of action, we'll need at least 50 people who are dedicated to making this happen with me. I just set up a SUPER SECRET Facebook page (meaning NO ONE on facebook will know you're a part of this group or see anything we post). If you would like to be an integral member in making this happen, please request to join the page! http://www.facebook.com/groups/239250816203089/

It's all manual for now. I would have to pay a programmer to automate the process, which I don't have the funds for at the moment. Hopefully once this thing gets rollin' I can afford to do that. :)

I'll be building upon this page that will end up being the website for our Shamelessness Project: http://herpesopportunity.com/the-shamelessness-project/

Much love, Alex. Glad to see you posting here, sharing yourself. I love the way you see the world and the way you write to share it with us. I'm looking forward to getting to know you better as we build a new Opportunity together ... ;) Exciting! Talk to you in a few hours!

Great! Glad you like it so far. Regardless, how about everyone throw in some statements that really call to them about what this movement is about for you. Any idea is welcome! Let's get the idea generation rollin'!

Great! So I don't have much time to work on this before November, but do want to get this ball rolling ... What are your ideas on what you want to include on our MANIFESTO? (This will be plastered all over the (h) opportunity websites for people to download to really get what we're all about.) Here's a quick mockup of the style I'm going to be creating for it: http://screencast.com/t/9fxseCCj8TID ... and here are all the statements I've thought of so far (what would you add?): Life is vulnerable. Show yourself anyway. A lot more people are waiting to love you than to judge you. Life happens once. But love happens infinitely. Love to your fullest. Fear only holds you back if you believe what it has to say. Accept yourself first. Love those who shame you. Know that you're lovable, sexy, whole and worth it. Others may reject herpes. Never reject yourself. Who you are is more important than what you have. You are more than you believe yourself to be. The greater your desire to hide, the greater your opportunity. Shamelessness. (Shame points to more opportunities for wholeness.) Self love = self acceptance. Letting go of herpes stigma means letting go of the myth that your not enough. Stepping out of shame and into the light is revealing the true you. Authenticity can be scary. It's risky to show who you are. Do it anyway. The only way to end the stigma is to accept myself first. Then others. Herpes doesn't have the power to change your life. You do.

Yes, in response to Kaande & SBS, I think we should keep this to just herpes for now. Trust me, this shamelessness campaign will be taken to other areas where shame dwells in the future, but it dilutes it if we go for everywhere at once.

Of course this isn't just an American thing! We don't discriminate. ;) I think any country that speaks English would work for now. We have people in Canada, New Zealand, Australia, England, etc. Anyone who wants to throw in their energy and positivity with this movement is more than welcome!

Yes, I love post secret, too. And this project will be different than that. It will add in the layer of everyone's "secret" becoming public once a certain number is reached. The only reason herpes stays secret is because of the bullshit story we are all collectively believing that having herpes means we're somehow not enough. The "stepping across the line into the light" as a united group is where this project derives its power to heal and transform. When a tribe of enough people chooses to step in unison, then the shame has that much less power to work with. The stigma starts to dissolve. The newsworthiness of this project is huge. Getting Planned Parenthoods and health clinics (each county in the US has a health clinic) involved should be a no-brainer. Once a few news outlets pick us up, the momentum will be unstoppable. But it takes all of us in a concerted effort to spread the word and make this happen. I definitely won't be able to do this alone. And I hear that you're with me. We can join forces to do a campaign that plasters the message all over where it counts. I'll plan on setting up a conference call with all the people who end up on this thread who want to help out. This is all happening in November. I'm officially excited! ;)

I'm friggin' excited reading all of this. Thank you for starting this thread, SingBlueSilver! I feel a hand-held snowball building momentum into a juggernaut snowball. ;) Let's start brainstorming on what this special community project would look like ... Breaking down the walls of silence as a collective force. I see it as us nudging our snowball down the top of a mountain and watching it as it builds momentum and size until enough people are "out" from the shadows and into the truth. Here's the idea I've been mulling over for quite a while, which sounds like its time has come. I can put more effort into this project after the H Opportunity weekend is over (in a few weeks): 1. We submit our own and then recruit others to submit their own "Shame profile" — a shame profile includes a) a blurred photo of the person, b) their alias, c) what being ashamed of having herpes has impacted their life, and d) what is available to this person once shame is shed. (Anything else that would be good to include/ask?) 2. Once we reach a certain number of people who fill out a profile (any ideas on what a good number would be? 1,000? 10,000?), ALL profiles go public at the same time — all of our pictures go up live, our actual full names, etc. What does this do? It will allow all of us to step across the line at the same time. As one, united tribe. With no shame. Celebrating who we truly are on the other side of hiding. What do you all think? I'd love to hear all of your ideas on how to make this project even better! This is going to be HUGE. :)